Well, I had hoped for more definitive answers today following my OB check at my local doctor's office. Unfortunately, this was not the case. I guess I can understand it, but it seems my cyst is a situation which people know little about and there isn't much that can be done to deal with it. The practitioner consulted with my doctor, and then came back to chat with us. She shared that in most cases it isn't something to be concerned with and that they typically disappear. They're recommending that we wait to have a sonogram until 18-20 weeks. I was hesitant about this decision as the doctor at Washington University had recommended 11 weeks. It just feels SO far away, and I want answers now. I can acknowledge that by having the ultrasound too early, I may still have concerns if it hasn't had time to "disappear."
Apparently, they will refer us to St. Mary's (I'm assuming this is another local hospital, but I honestly don't know) for a level 2 sonogram which is able to examine the baby with more detail. She said there really wasn't any reason to do it sooner if we weren't open to having amniocentesis. Based on the research I've read, I'm not currently willing to undergo the amnio due to the associated side effects although this is the only test that could confirm with 100%certaintyty if there is a chromosomal abnormality. The doctor shared that a baby has a better chance of living outside the womb at 24 weeks, and it would make more sense to consider this test at that point anyhow. She had a lengthy discussion with us regarding genetic testing to confirm the possibility of a chromosomal abnormality, and just the mention of Trisomy 18 caused me to burst into tears. I fear my doctors aren't always prepared for dealing with me. At this point we're unsure if we want to complete the genetic testing. We know we would not terminate the baby, and often times these tests given inaccurate information which could lead to more unwarranted worries. We have some time to make our decision.
I'm really hoping and wishing with all my might that this cyst will just go away! I almost picture myself visualizing it leaving. I realize this is slightly ridiculous, but it helps to lift my spirits. I'd been doing well the past couple of weeks, but have found myself feeling emotional about the situation as the current doctor's appointment became near.
I made all of my appointments until one week past my due date (6/17). Let's hope I don't use that last one! :)
1 comment:
i'm keeping you guys in my thoughts kel, and staying positive! like i said, my friend's hubby was born with an umbilical cord cyst. i don't know much about the cyst, but i do know that he's totally healthy! HUGS!
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